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They say there’s a reason for everything.
So there must be a reason my life is affected by Huntington’s Disease.
And that is the reason for this blog.
Ashley
Aug 30, 2023
Dear Daddy, It's been a year,
Dear Daddy, It's been a year since you passed and so much has happened, so I wanted to write you this letter and catch you up. I made it...
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Ashley
Oct 31, 2022
Goodbye, Dad 🖤
Two months ago today, we said goodbye to dad. I've started writing this post SO many times, and haven't been able to finish it. As any of...
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Ashley
Nov 13, 2019
Are you a Carer?
Today I am attending the Carers NI summit as part of my job with HDANI. I have been invited along to have a stand to talk to anyone...
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Ashley
Oct 8, 2019
PEG FEEDING….Sorry what?
Please rise you hand if you have any idea what PEG feeding is….. Because I had no idea! But I’ve come up with a new idea, when someone in...
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Ashley
Jun 28, 2019
HDSA Convention – Day 1
Hey everyone! So today was the first day of the HDSA Annual Convention!! What a day!! I AM EXHAUSTED !! So it began with a 4am alarm...
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Ashley
Dec 4, 2018
Siblings- A Huntington’s Poem
In 2014 I was entered into the Lady of the Erne, which I guess you could call a pageant here in Ireland. I was extremely lucky to have...
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Ashley
Dec 29, 2017
Ground Breaking News- Where were you when you heard it?
I hope everyone had a lovely Christmas, I certainly did and I can’t wait to bring in the New Year. I am extremely excited about 2018 as I...
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Ashley
Dec 6, 2016
PGD- Will I ever have children naturally?
{ Preimplantation genetic diagnosis (PGD) is best described as a version of IVF (In vitro fertilisation) it is a method used so that...
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Ashley
Dec 4, 2016
My Experience Testing for Huntington’s Disease
Recently I had the opportunity to be on the Help4HD radio show, during this show I spoke about the testing process here in Northern...
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